Wednesday, October 21, 2009

Not so appealing

I am waiting to talk to my doctor about appealing the denial of my appeal, and I thought that I would write my own letter of appeal to my insurance company as well. I decided to wait on that till I calm down a bit since the least inflammatory opening I could come up with was “Dear Corporate Scum.” I thought the ending was rather fair though since I did ask God to have mercy on their worm-eaten souls, giving them the benefit of the doubt as to whether or not they actually have souls. Ah well, I am praying that my faith kicks in, and I find a way to act in a more charitable manner. I am trying to remember to love my enemy, though why they should be my enemy is a mystery to me. Pray for me and for everyone being driven around the bend by this insane system.
Deacon John
Wednesday of the 29th Week in Ordinary Time
Oct. 21, 2009

Tuesday, October 20, 2009

Denial ain't just a river in Egypt...

I got the letter I halfway expected today, the letter from my insurance company denying my appeal of their decision to not cover my bone marrow transplant. I’m disappointed, but not surprised. I suppose their job at this point is to deny and delay in the hope that I will either quit or reach the point I am beyond help. Well, I am a long way from being beyond help, and if they think I will quit, they don’t know me very well. They denied stating that the transplant is part of a clinical trial, despite being assured by my doctor that I am not part of any clinical trial. Denial again seems to be based on one of the drugs the doctor wants to use. I get the awful feeling that people are playing semantic games with my life. I am getting in touch with my doctor in Chicago to see what the next step is, I am sure he will appeal the denial. I’m not through either. I will fight back, and fight as hard as I have to to win. I envy people in countries that don’t have this insane insurance mess, who don’t have to spend time begging for help from people they are paying to help them. This crazy system needs to change and change today. Single payer, anyone?
Deacon John
Tuesday of the Twenty-ninth Week in Ordinary Time
Oct. 20, 2009

Saturday, October 3, 2009

I Won't Back Down

Last year before my first transplant my brother and sister-in-law made this a theme song for the fight. In light of the relapse, waithing for the next transplant, and insurance difficulties, I thought was a good idea to bring it back. Sing along!
http://www.youtube.com/watch?v=LKqO0FeaCFQ&feature=related
Sorry, I couldn't figure out how to upload the video.
You can also find in my Facebook page
http://www.facebook.com/home.php?ref=home#/home.php?ref=home
Deacon John
Saturday
Oct. 3, 2009
St. Peregrine, Pray for us
Blessed John XXIII, Pray for us